Monday, May 12, 2008

Closer we come, again!

Well, the countdown begins again. We've got three days from today for the surgery. Hopefully we don't get anymore calls from U of M. I already told Jon that if we do, I'm not answering it & that he could call them back & tell them they're not allowed to bump her! I'm sure things will go off without a hitch this time. The nerves are at bay for now, & hopefully they won't go into full excited mode too soon! She has had such a good week this past week, so I am very thankful for that. Last night was the best night we've had for quite a while. Both the girls were asleep by 9:30. Once I put them to bed & laid down it was after 11 for Mommy - can't help but watch a little of the news. I was getting up & giving Vaeh a breathing treatment at 4 AM, but here lately I've been pushing the morning one off until 6 AM. And usually she wakes me up around 5 AM. So this morning I got a wonderful suprise when the alarm woke me at 6 AM! To add to the good morning, She hasn't been vomiting as much as a normal day.

On another note, please keep a couple of our little heart friends in your prayers. A beautiful little girl by the name of Margo is battling for her life. She is exactly one year younger than Vaeh (they share a birthday!). She has already had one heart transplant, & there is a possiblilty of her needing another in the very near future. They are going to do a cardiac biospy on Wednesday.
Little Kaitlyn has been in the hospital since Tuesday with pneumonia. She is another little one with tet. She's had some complications & was on a vent at home. According to her blog, she went into cardiac arrest Tuesday & was down for about 30 minutes, but is stable now. In the midst of this, her family is preparing to move to Texas, so needless to say things are quite hectic for her family.
Champ (aka: Stephanie) is HOME!! After having her permanent pacemaker placed & regulating her coumadin/ INR levels she was discharged home on Sunday! What a great mother's day gift for her mommy! Welcome Home, Champ!
Please continue to keep these little kiddos & their families in your prayers! Although kids do well, there is always an uncertain future with CHD, so we pray for the best, live each day to the fullest & thank God for each moment we have together! I think this goes for anyone, CHD or not!


The Portas said...

I hope you had a good Mother's Day with your little sweeties. I was so glad to read that you were at peace about the reschedule. The 15th IS Vaeh's day! I don't know if I mentioned this before, but the 15th of April was Elijah's day, so 15 is a good day to have a surgery!

We are praying with you, on your journey toward surgery. It's not an easy road! Hang in there. Soon you will be looking at 99% sats and you will cry! I did!

Take care! xoxoxo

Wendy said...

Hi Tina,

I hope you had an awesome Mother's Day! I'm praying that Vaeh continues to be strong and healthy as she approaches her surgery date, and that God continues to give you peace. I always seemed to get more nervous as we entered the week "of" the big day. Know that there are so many other heart mommies keeping you close in thought and prayer.

Give Vaeh (and Gabby) a big hug from us!

Lots of Love,

Wendy (& Emma, too!)

Mina said...

We are counting down the days with you, Tina. I hope all the pre-op goes well, and that surgery is on schedule, as smooth sailing as possible. I'm sure you are so ready to have this behind you. I'll be praying for precvious little Vaeh. Keep us updated whenever possible!

Vanessa said...

I'm so glad you've had a good week. I think it was nice that you were able to spend Mother's Day at home with the girls instead of in the hospital. I'm thinking of you guys every day!