Tuesday, February 23, 2010

Good visit:0)

Monday's visit with Dr. Butto went pretty good. Vaeh couldn't wait to "see Dr. Butto!" But actually I think she was much more excited to see the echo room... & her bestest friend - gel!!

When we arrived, the girls were all in disbelief of how big Vaeh has gotten! Its been 3 months since she was there last. Since November, she's gained a pound and a half, & grown 3/4 of an inch! I assured them that her attitude is growing with her body;0)! It was so cute to see her say "hi" to everyone!

We, of course, had to have our usual round of bubble-blowing while waiting our turn for the echo. She just loves bubbles, & a while back they were the only way to keep her semi-calm during her visits. So the girls all know that "Nevaeh likes her bubbles!"

I'll bet she asked about a dozen times before we finally made it, but the common question of the day was "I go play with gel now?" I was so very thankful when we did make it to the room, as the technician we had is the best at this particular office!! I had even said a quick "please, Lord" for Megan to be working today. Again I have to say, "don't tell me prayer doesn't work!!" (LoL) Once in the echo room, we met Brad. He was a young man doing a clinical rotation in his training to become an echo technician... and he was great with Vaeh!! You could tell by the way he interacted with her that he is very good with kids!!

So, during the echo as Megan is explaining different things to Brad (cause you know Vaeh is just so straight forward... HA!!) Megan became Miss V's personal gel supplier! We took the approach of "if it keeps her happy, lets go with it." Lets just say by the time they were finished with the echo, Vaeh had gel from fingertip to fingertip, chin to stomach! Of course, I was too engrossed in the actual echo to remember to take pictures of her... maybe next visit.

Speaking of the next visit, we get to wait - are you ready? ... 4 MONTHS!!! Maybe we'll be able to make it to 6 month visits yet:0) Her pressures are again unchanged, so we're status quo on everything for right now. Dr. Butto mentioned that he was considering decreasing her revatio, but since there wasn't any change (or lowering) in the pressure, that we would just kinda leave things where they are for right now. It made me feel good knowing that long term, he is looking to get her off the meds, just not ready yet. I did ask him about the possibility of a cath to stent & he said that its really not an option at this point. So for right now, the meds are the path we need to take!

So, we just have to sit back & enjoy life for the next 4 months until our next "date" with the good doctor! Her next appointment is June 28th, so summer... here we come!

4 comments:

Vanessa said...

Great report! I'm sure you will get to your 6 month visits soon. That is awesome that Vaeh does so well for her echos. Maybe I need to take bubbles with me next time. Hope you all have a wonderful rest of your week!

Lee Family said...

I am so glad everything went great, Bubbles is a great idea. I think I will try that next time with Logan because he still screams every time he has an Echo or EKG.

Have a great rest of the week.

The Portas said...

WONDERFUL, wonderful news about the good visit!! I bet she is the star of the office when she walks in. :) And four months, YAY! So so proud of you, Vaeh!

Wendy said...

Hi Tina,

I'm so glad that Vaeh's echo went well and that things still look good in that precious heart of hers! The worrying can now be put on hold for another 4 months! :) (Isn't it just the strangest way to live? Breathing that sigh of relief after another good cardiology report....I suppose it will always be that way for us heart moms.)

I loved hearing how Miss Vaeh is so awesome for her echoes! What a big girl! If only Emma would lie still enough and enjoy the gel like that...

Well, I hope that all is going well in your neck of the woods! And that everyone is healthy!!

Take care and hug those beautiful girls for me!

Lots of Love & Prayers,

Wendy (& Emma, too!)