Friday, January 15, 2010

One year ago...

I can hardly believe it. After Nevaeh was born, I was so unsure of many things. Will she live? Will she see her first birthday? Second, third? Will she be able to do "normal" things? Will she eat?! She's met all of those milestones & so many more in the past year. But this milestone was one of those that I never thought she'd meet. That makes it so much more sweet!

One year ago today, Vaeh was in this room...



That was one of those days you really don't want to live, but when it was over I was sooooo happy!! Here's Miss V just before she went into the cath lab... feeling a little bit loopy!



The result of all those hours of hard work in that room... no more oxygen & no more orange tinted plastic sitting under her nose (ie: cannula)!!


She looked so strange for a few days following the cath without our friend, Mr. Cannula! She had had it for so long that it was like a part of her was missing. Believe me, though, we got used to the new Vaeh REALLY easy!



Not only did she loose her oxygen tubing, but we lost another "thorn in our side" with this...


Yep. She also lost her Mic-key button in that trip to the hospital! This was one of her very first completely "tubeless" photos! That was another dream that I never thought would come true... Vaeh being tubeless. The docs, & therapist even, made us feel as though she would never eat by mouth because of all the complications she'd had as a baby. Well, true to form, Miss Vaeh showed them to expect the unexpected when it comes to her!

Its still hard to believe, sitting here typing this post, that we've made it an ENTIRE YEAR without any type of surgical intervention! Now, our next milestones are to get rid of all her meds & possibly go longer than 3 months without seeing the cardiologist. Maybe?!

9 comments:

The Portas said...

A whole year, wow! Amazing!! When in the thick of things, it sure does seem like these good days will never come. Once they do, though, it is the best feeling in the world! I am so happy for and proud of your tubeless, wireless, AMAZING little girl! Praying hard for those meds to dwindle now. :)

Amber said...

Awesome! It doesn't seem like a year ago...craziness! Celebrating withyou...and thinking I may have to make the plans to get our miracle girls together. ;0)

Lee Family said...

Wow how exciting a whole year without Intervention. I cannot wait until Logan gets his Micky out someday. I am just so excited to hear about the great progress Vaeh has made over the past year. YEAH. COngradulations sweety

Colleen said...

That is so exciting! She has come so very far in her little life. She is an amazing little girl!

Kathy said...

I can't believe how she's just sailed through this year...
she's a superstar for sure!

One day...one day..is it possible for us to be tubeless?
Vaeh gives me hope.
Kiss those girlies for me!
kathy

jencooper said...

Way to go Miss V!! You are doing amazing!!!

Mami Adame said...

Vaeh has come a long way! Its so exciting to have less things for us to worry about isn't it? Hope she had a wonderful birthday. Congrats on doing such a wonderful job!

Vanessa said...

Wow it's been a whole year! I'm so proud of the progress Miss Vaeh has made! :)

Wendy said...

Hi Tina,

My goodness, time flies, doesn't it?! It feels like just yesterday that "Mickey" in place of her "Mic-Key" brought happy tears to my eyes! Vaeh is certainly an amazing little girl! I'm so thankful for your friendship, and honored to be able to follow Vaeh's incredible story.

May God continue to bless Sweet Vaeh and her little heart, and may He continue to keep her healthy and strong!

Lots of Love, Hugs & Prayers,

Wendy (& Emma, too!)