Monday, August 24, 2009

One less...

Yep. We are now showing "one less" medication on Vaeh's list. We were able to drop her lasix as of her appointment with Dr. Butto today!!

It was a fairly good visit with our 'friendly neighborhood cardiologist'. Miss Vaeh was an inch taller than 3 months ago at 35 3/8 in., & nearly a pound and a half heavier, weighing in at 29.5 lbs! Her EKG went as smooth as one could go, looking normal (for her;0) & her echo went well, too. Despite the technician seeming to not know what she was doing. It happens every time we go & this particular gal is working. She seems very uneasy completing the echo. I'm not sure if its just with Vaeh, or its like this with all her patients. She inevitably calls for Dr. Butto to come in & he has to show her where things are, tell her what exactly to look for. Today, Dr. Butto came in & had to ask her to redo everything that he wanted to see (tricuspid regurg, her PA's, & the RV pressure)... ugh!

So, her RV pressure has come down some. He said it was 45-50 last time, & today it was 39-41 depending. So we're still on the revatio. The dose, however, is under question somewhat. I asked him to write another refill, because we had run out. He asked me the concentration, which I didn't know - the pharmacy didn't put that on the bottle. After checking her chart, the nurse brought in the script & it had a different dosage than what Vaeh's been on for the last 3 months. So, after we talked about it, the nurse called the pharmacy where we had it filled. They didn't know what her concentration was & why we were instructed to give her half the amount that Dr. Butto wrote. "The person that compounded it will not be here until tomorrow," was the response we got.

WHAT?!?!?!? You mean there's a chance that we've been giving Vaeh the wrong dosage for the last 3 months?!?!?!? So, after letting my blood pressure come down out of the rafters, I'm going to the pharmacy tomorrow to get the refill & get some answers!! Lets just say that if we've been giving her the wrong dosage, heads will roll!!

Other than that, everything went fine & we don't have to go back for another 3 months!! I'm hoping that her pressures continue to come down & we can get her off the meds. Although I'm extremely happy about only having one medication in the cupboard!! That's a first in her life!

So, we're enjoying having Daddy home for the week... hope everyone else is doing well!

9 comments:

Kathy said...

Stop rolling that head!

I HOPE they haven't been giving her the wrong dosage...I feel so sorry for the poor pharmacist if that's the case. (go easy on them)

BUT...she's good to go for another 3 months. AWESOME....ask next time if she's ready for 6 month visits!

Thanks for the updates!

Kathy said...

Stop rolling that head!

I HOPE they haven't been giving her the wrong dosage...I feel so sorry for the poor pharmacist if that's the case. (go easy on them)

BUT...she's good to go for another 3 months. AWESOME....ask next time if she's ready for 6 month visits!

Thanks for the updates!

Colleen said...

What could be better than one less medication to give. That's so awesome! It looks like she's making great progress!

Vanessa said...

Yay for no Lasix! Maybe you can start on the potty training since she won't be going every 5 minutes. Seriosly how can anyone potty train a child on Lasix. lol!

As far as the pharmacy...oh I would be pissed! I hope you got it worked out.

Vanessa said...
This comment has been removed by the author.
Amber said...

I think I felt your blood pressure rising through your words! It never ceases to amaze me...how we guard and fight for our babies. Go get 'em momma! :0)
So happy she is down to one! We feel like she is setting the pace for Grace...I keep telling her to lose that button!!!!

The Portas said...

Oh I'm so glad her pressures have come down a bit. Let's hope that's a trend! It sounds like an overall great card visit! Minus the dosage/pharmacy/inept technician. :) I hope you get everything figured out with the medication dosage. That sort of thing is so frustrating!! I don't blame you for wanting to roll some heads around.

I hope you guys are having a good day!! xo

Melanie said...

Even with the medication concentration issue it sounds like a Nevaeh got some great news! Lower pressures and no more lasix-that's fantastic!!

Vanessa said...

To answer your question...Arianna had an echo 6 months ago. Her cardiologist wants to do an echo once a year and an EKG once a year. That is nice that your PC does both at every visit. The clinic I go to is SO busy sometimes I wonder if they are passing up tests that should be done on a more regular basis just because it takes too much time.