Saturday, March 28, 2009

She's baaack!

No, we didn't go anywhere. But ever since they put Miss V on this revatio, she's really been different. She had lost some weight. Enough that even the pc mentioned how skinny she was at our last visit - "she used to be... fuller?" She's down to skin & bones. At one point she was just under 24 lbs. (remember she had been near 27 lbs at one point!)

After we started the revatio, she became very sleepy, with very little energy during the day. The meds coupled with a double ear infection followed by an upper respiratory infection all in the same month really wore her down. Plus I have to wake her up between 11PM & midnight, so her sleep scheduled has been really messed up & that hasn't helped the energy level either.

Well, she's been making up for lost time:0) The past week or so, she has been eating everything in sight! Her appetite seems to have returned. For example, the other night Jon was home. He had been sleeping when we ate supper, so he ate about an hour after we did. Miss V was at his heels the entire time he was eating... begging "I want some!" She has done nothing but eat for the past 3 days, from the moment she wakes up until the moment she goes to sleep - "eat!" She's finally starting to fill out some, which is making everyone happy. Lets just say that even Daddy, who NEVER worries, was starting to get slightly concerned. But she's finally back to her old self.

Her energy level has returned as well! Right after starting the meds (which includes the broken sleep schedule) she would constantly say through the day "nigh, nigh" (night, night). She was easy to get down for a nap, that could last up to three hours. Then she was ready for bed sometimes by 6:30 - 7PM! Really not anything like the normal Vaeh. Well just like her appetite & eating habbits, her energy level has increased, too! She's busy from morning to night, not usually wanting to take a nap anymore!

Sorry I don't have any pictures... I took some of her the other night right after her bath, but she looks like a skeleton with skin on it & a round little tummy! They were almost frightening, so when I get some better shots of her clothed (LoL) I'll put them up!

We've also been in the planning stages of transitioning her out of early intervention into head start. Here in Ohio, Help Me Grow is the EI program. Children can receive services up until they are 3 then they have to transition. Well, Vaeh is just about 6 months away from turning 3, so the process has begun. And from what they tell me, she'll be in preschool this fall - ugh!! Okay, I love all this "normal" stuff, but give a Momma a break! Let me adjust a bit before throwing me another curve ball! Oh, why not - go ahead & give us your best shot! We're up for it!

Hope everyone has a great weekend! Its finally starting to get a little warmer... hope everyone is enjoying the weather!


Pam said...

Yay for eating again!! Isn't it crazy how icky those meds can make our little ones feel.

I'm glad things are going better, and hooray for pre-school!! Although Rhett doesn't talk much in school, he does love it, and loves riding the bus.

It's been so good for him!!


Vanessa said...

So glad to hear she is eating. Wish she could teach Arianna a thing about that. She is still around 23 pounds and holding.

I'm also glad her energy level is back!

I can't believe our girls will be 3this year. Where has the time gone? I would be freaking out about preschool too but Arianna can't go. :( I'm thinking about letting her try the church preschool when RSV season is over and that "normal" thing most kids do is very scary for me. No one has watched Arianna besides family. I'm sure I'll be in her class the entire time. LOL!

Can't wait to see some more pictures!

The Portas said...

I'm so glad she's eating better! It's funny how the phases come, for us, too. One week Elijah will eat practically nothing and I'll start to get concerned. The next week he's a total piggy. I will pray for the good eating to keep it up for Miss Vaeh!

She's creeping up on 3, how crazy! I can't fathom that. And preschool? NOOoo!! Not my baby! :)

Have a great day, full of FOOD and weight gain! xoxo

Lee Family said...

I am so glad to hear she is doing so much better and wanting to eat that is great maybe know she will start to put some meat on her bones!
Have a great week!

Wendy said...

Hi Tina!

I loved seeing the pics of Miss Vaeh out in the fresh air, swinging and riding her bike! Wow, I can't believe how big your little girl is getting to be! And preschool on the horizon....sigh. I know exactly how you're feeling.

I'm glad that Vaeh has decided that she wants to eat again. I think they go through a growth spurt at this stage, and get taller and skinnier....Emma looks like a string bean to me, too, lately.

Give that sweet girl a big hug from us! I may not post as often as I'd like to you, but you guys are always in my thoughts and prayers.

Lots of Love,

Wendy (& Emma, too!) ~ 3-years-old, 6q deletion, TOF

P.S. Have you checked this out? I just came across it today...and thought I'd pass it on to all of our "hero" friends! :)