Friday, March 21, 2008


Boy, this yogurt is yummy!

While in the hospital earlier this week, Vaeh decided she wanted to taste some things. The nurses gave us some baby food, and she actually took a few 'tastes' from the back of a spoon. Tonight at dinner, Mawmaw brought some vanilla yogurt to try, and she actually took some of it! You have to get it in just the right spot on her tongue or it triggers a gag, but if you're careful... We may be seeing the light at the end of the tunnel.

She is doing so much better over all with eating (tube feeding) since we changed her formula while she was in the hospital. She hasn't been spitting up (vomiting) as much, so maybe the pregestimil was causing the problems instead of helping. We had questioned last year when they put her on it in the hospital that it didn't seem to make a difference and the only reason she had so much trouble in the first place was because of the NG tube. But what did we know, we're just her parents! Dr. Butto last week was suprised that she was still on the pregestimil at that point. He said that kids are usually on that formula for about 2 months, and Vaeh was on it for 13 months! Oh well, at least we're moving in the right direction. Maybe by her second birthday she'll actually eat a piece of cake! What a picture that will make!

1 comment:

Josh, Carley and Kaitlyn said...

Hi Tina! Thanks so much for your thoughts and prayers. Kaitlyn has the same hypersensitive gag reflex thing going on. I'm wondering if she'll ever be able to take anything by mouth. The pregestimil gave her really bad dirreha. Since then she's been on elecare and she's doing great on it. We're starting our 2 week home trial tomorrow. The pulmonologist says that if everything goes well we may be out of here in 12 that's April 4th! I cannot wait!! I'm so glad that Vaeh is doing well and back at home now. I can't imagine what it'll be like with a child that's "aware" of what's going on. I guess we'll cross that bridge when we come to it. Man I've written a paragraph here. :) :)