Now, as for my little stinker! My oh my how much personality Miss Vaeh is beginning to show! I think that she went through the "terrific 2's" & is now moving into the "terrible 3's" just like her older sister did:0) She's really beginning to push buttons to see how far she can take Mommy! I love every minute of it!! Today while we were waiting to have her echo done, she was kicking around, hitting me, etc. Then during the echo, she decided she wanted to pull on the EKG leads that they had on her. She created quite a bit of artifact in the strip, but the pictures they got at least turned out well enough. Just take a look at this face...
Showing several "shots" of her heart.
Her appointment went very well today. It started off with perfect sats - 100%!! I just love seeing those triple digits:0) Her blood pressure has leveled out too, back up in a more normal range vs. being on the low side. Then onto the scale. I think (?hope) I told you all how Miss Vaeh had lost some weight right after we had her button taken out. Well, for a short time we kinda got a little worried but once she adjusted to being on the revatio, her appetite picked up & she seemed to be getting back to normal. Well, the scale proved that today. Since we were there to see Dr. Butto in March, little miss thing has gained almost 3 pounds!!! She weighed in at 27lb 14oz today!!! That really did my heart good!
Dr. Butto also said that the revatio is doing its job. Her right ventricle pressure is down from 55 to high 30's/low 40's! He did say that we still can't change her dose any, as the half-life for this drug is short & her pressures are still elevated. But we're moving in the right direction. He also gave the okay for her to go to a center based preschool vs. home!! So, come this fall I'll have 2.5 hours to myself 4 days a week! I'm not sure what I'll do, but I'll start planning now! (LoL)
Other than that, she's doing great & we don't have to go back for - are you ready? 3 months!!! We've never gone that long without seeing Dr. Butto! I think I'm going to go through withdrawal LoL!!
The girls are both enjoying the nicer weather. Vaeh is constantly asking "ow-side." I'm going to have my hands full this summer! They're both getting so big. Vaeh can now tell me both of her meds & which one each is by looking at the color. Check out this video of her taking her meds...
How many 2 year olds do you know that can say the name of their medicines?! Just early training for her to go into the medical field (LoL)!
Gabby is doing well. She's getting excited about starting kindergarten. We even went & got her immunizations up to date, which meant that it was her turn for a poke (actually 3) :0( She did so well, though. That's one step closer to my baby going to school - ugh! These kiddos need to slow down. Vaeh's doing it to me, too! Look at her latest feat in the world of getting older...
Yep. She's in a toddler bed instead of her crib. Her first night in it was last night & she did fairly well. I did hear her around 2:30 this morning, & went in to find she had rolled out of bed & underneath the bed! She didn't even wake up when I pulled her out & put her back to bed! Glad she's a sound sleeper!
Well, there you have it. Sorry its been so long. I promise I'll try not to let it happen again! Hopefully everyone is doing well. Thanks for checking in on us!
PS - If you all could, would you please keep a couple of our friends in your prayers? Most of you probably know Miss Gracie, but if you're new here please link over & read her story. Her family is such a strong ,wonderful bunch & they're going through some trying times & could use your prayers.
Also, another friend of our family are in the midst of a battle for life. Jesse is a young man who is once again battling leukemia & things are dire at this point. He is in critical condition after a failed bone marrow transplant & they're hoping that he can gain enough strength to fight for a second chance at transplant. I know the family would appreciate your prayers, too!