Well, being off of the oxygen was short lived. The past couple of nights, Nevaeh has needed a half liter some of the time through the night. She's not supposed to be below 75% now (it was 70%), nor above 90% if she's on oxygen. She had been doing really well, but then started to sound a little congested. Last night was particularly fun! (yes-that was meant to be sarcastic!) She did okay for about a half an hour, then she desated. So I turned the oxygen on. Over the course of the night she slept well finally. She hadn't been sleeping very well because of vomiting, so last night was such a blessing that she finally slept. Mommy, however, still didn't get a good nights sleep. At one point I had her up to 2 liters. Then this morning once she was out in the living room, she was sitting at 94% on room air!?! Sometimes I'm not sure how well the monitor picks up her percentage because she looks so good clinically (fingernails & lips aren't purple). I'm beginning to think the only way I'll get a decent night's sleep if either she or I'm in the hospital. So if anything will be nice having her in the hosptial, at least I'll be able to get some sleep! Hopefully after this final repair, she won't need the oxygen anymore since the bloodflow will finally be going in the right direction!
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I know what you mean about not getting much sleep! Hopefully things will go according to plan and you'll see many improvements once Nevaeh recovers from her next surgery. Meanwhile, I suppose it will be oxygen as needed, and little sleep. We'll be praying for your little one!
I am so sorry you haven't been able to get much sleep. That has to be rough having to keep her between ranges. Your an awesome mom and Nevaeh is so blessed to have you!
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