Monday, March 3, 2008

Nevaeh Kaylene

Nevaeh Kaylene was born on September 17, 2006. The next morning we were told she had a murmur. By that evening we were told she had Tetralogy of Fallot, and would require open heart surgery to repair the defect. She was transfered to Toldeo Children's Hospital and would undergo her first of many procedures at 4 days old.
With the first heart catheterization, we were told it would take several surgeries to correct her defect. Our journey had begun. Who knew where it would take us.
At 2 and a half months old, Nevaeh had her first corrective open heart surgery. Almost 8 months later, she would have a second open heart. Along the way, there were many heart catheterizations, including angioplasty of the pulmonary arteries. We are still waiting for the complete repair, as her VSD remains open.
In addition to all of the problems with the heart, Nevaeh has also experienced developemental delay due to multiple hospitalizations. She also is currently fed through a tube in her belly, as she forgot how to swallow.
Through all of this in her short life, she remains a source of joy for us every day. She is a normal, happy, "healthy" little girl if you look beyond all that she has been through. She will always be our reflection of heaven!

1 comment:

Vanessa said...


I am so glad you started a blog for Vaeh! This has been such a great resource for me. I have made such great friendships on here, as you will too.

I know this upcoming week is going to be stressful so here's a scripture that comes to mind..

Pslam 29:11 The Lord will give strength to His people; the Lord will bless his people with peace.c