There is a little girl I'd like to introduce to you all. She is a precious little girl, who is part of our little "club", which is how I met her & her Momma. Meet Maddi...
Isn't she a cutie pie?!! Maddi has ToFw/PA, MAPCA's, as well as duodenal atresia & reflux. She had her first open heart back in August of '09, as well as a couple of heart caths. In addition to the heart related surgeries, Maddi has had surgery to correct her duodenal atresia, as well as a G-tube placed & the Nissen. From what I've learned about Miss Maddi, she is a very complicated case of tet.
Just recently, Maddi went in for a follow up visit. According to her Momma's posts on her carepage, Miss Maddi has been given a grim prognosis. The docs are telling them that Maddi will most likely not make it past 5 years of age, unless she has a heart-lung transplant. Even with that, she doesn't have very long.
I cannot even imagine what a roller coaster this family is on right now. I know they are looking into their options. More importantly, they are trusting in God. Would you all please join me in lifting this beautiful little girl & her family up in prayer?! I'm sure they'd appreciate it.
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4 comments:
I am so sorry to hear about this little beatiful girl and what her family is going through I can not even imagine. We will pray for her and the family.
On it! Thank you so much for sharing her with us...
Oh, what a sweet little girl. We will pray!
Sweet Tina and family, I am so touched by you giving our Maddi a spot on Nevaeh's Blog. In the midst of your journey, you find a place for others. God will certainly continue to bless each of you and bring continued healing and grace to your precious one. Nevaeh is such a beautiful little girl, an inspiration to us all, what a testimony of God’s grace, mercy and healing power.
Although the doctors have given a grim forecast for our Maddi, we believe the report of the Lord and know that our God is bigger… now is His time to work. When man has done all he can do, that’s when God can shine. We stand, we believe and we expect great and mighty things to come for our Maddi.
Thanks again for sharing our Maddi and a special thanks to those who have responded. Maddi’s Nonie (paternal grandmother).
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