Okay, first off I'm sooooo mad at either 1.) my computer, or 2.) blogger. It (not sure which one) won't let me upload any photos or videos... UGH!!!!!!!!!! It all seemed to start around the time that we got our new laptop. I can't figure it out & its starting to make me very upset. I've wanted to show you all Miss Vaeh's orthotics & she does this new thing that I was wanting to show... Oh well, maybe I'll figure it out here soon!
This past Monday, we had our now quarterly (every 3 months) date with Dr. Butto. I had to laugh at Vaeh on Monday morning. She asked where we were going, & when I told her to see Dr. Butto... she jumped, laughed & said "yay!" Not sure if anyone remembers (or if I ever told...) but back in the beginning, Vaeh would SCREAM through her appointments with him! It became quite a production just getting an EKG. Especially if doc walking in the room, she would turn it into high gear! So at this appointment when Dr. Butto walked in & Miss V smiled... lets just say Dr. Butto got quite a kick out of that! I think he may have to come up with a new nickname for her. "Little troublemaker" isn't very fitting anymore!
Vaeh just keeps growing! She was 36.5 inches tall & weighs a whopping 31lbs!! Hard to believe she's gained a quarter inch & a pound in a little over a week! (gotta love the difference in scales & person measuring;0) Her sats were perfect - 100% & her blood pressure was super! I was really suprised to see how high her blood pressure was -something like 101/68. I say "hi" because since we had increased her to the correct dose of revatio, she's been running in the 80's/50's! She sat almost perfectly still for her EKG, & of course had to "help" with her echo - they always tell us that they've never seen anyone who likes to play with the gel like her!
Overall Vaeh is doing really well! The only thing that was the slightest glitch in the appointment was that her RV pressures didn't change. It doesn't mean anything bad, but it means we still have to give her the revatio. But it also means things are stable. Meaning no "interventions" any time soon. Translation = we're going to make it an entire year without any surgical procedures!!! YAY!!!!!! Its amazing to think that we've made it that long! The longest she'd ever gone prior to this was between 6 & 8 months, but a WHOLE YEAR?!?!?!?!!!!! I have to admit, though, I'm getting kinda bored - LoL!! (just kidding;0)
A quick thank you for all the prayers for my Aunt & Uncle's family. His mom continues to hold her own. She had a biopsy last week, & they haven't gotten the results yet. Again, thanks for the prayers.
Well, its time I get moving! Lots to do to get ready for Thanksgiving! Its the beginning of my favorite time of year! Can't wait for all the smells in the kitchen tomorrow. Oh, & there's some changes I need to make on here.... Happy Thanksgiving, Everyone!!
Wednesday, November 25, 2009
Catching up...
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4 comments:
Hey Tina!
So happy to hear that Vaeh got a good heart report!!! What a relief! It sounds like she's getting to be such a big girl, too....in attitude and in measurements! :)
I hope you guys have a wonderful Thanksgiving. We have so much to be thankful for, don't we? God is good. Thank you for your friendship, Tina, I count it among my many blessings!
Give those precious girls a big hug from me!
Lots of Love,
Wendy (& Emma, too!)
www.caringbridge.org/visit/emmanicole
I am so glad Vaeh glad a great report, I am glad that things are going good that is always a relief.
I wish you and your family a very Happy Thanksgiving
YAYAYAYyyyy for a year with no surgical procedures! And another YAY for loving doctors! I just love seeing signs that these little ones, who have been through SO MUCH, are growing up and becoming more comfortable with people.
What a great overall report for your precious little girl!! xo
What a wonderful cardiology report! No intervention is the best news!
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