Getting closer

Well, we're now 5 days away (including today) from surgery. Its still kind of surreal that next week this time, the surgery will be over & we'll be in recovery mode. Hopefully moving through that stage very quickly! Vaeh has been doing well overall. The night before last she had a rough night, that is to say Mommy had the rough night because her sats were all over the place. But Mommy figured something out. If we put the pulse ox monitor on her left foot, she tends to alarm like crazy, and if its on the right foot she sats in the mid 80's to low 90's! I'm guessing that it has a lot to do with the circulation to the left leg. They haven't been able to thread a cath line (arterial) since she had the art line & central line for the first open heart that were in for about a month in the left groin. Basically the cardiologist says that its occluded, but she has enough circulation to the leg that its not a problem for Vaeh. Just creates problems when they do a heart cath. He has been able to go in the right side every time with no problem. So, my theory is that because the circulation is impeded to her left leg somewhat, there isn't enough blood flow to the foot/ big toe to pick up a good pulse ox. So, needless to say we now put the monitor on her right foot & she's been having great sats at night.

Vaeh also had her last OT session yesterday, and did fairly well. Michelle, the OT, said that she's doing things pretty much on target, we just have to keep giving her tasks that challenge her & keep pushing her to do more! We decided to skip the summer session for OT because it would be a new therapist over the summer & I don't think Vaeh will do well right after surgery with someone new! I know the separation anxiety will be quite high for a couple of weeks, so why throw some new therapist into the mix right away?! Its bad enough that we have to have new therapists, especially when she just started doing so well with Barb & Michelle. Hopefully it won't that bad of a transition to the new therapists, she's already been through so much...