tag:blogger.com,1999:blog-8324377882886503906.post3972194876235675295..comments2023-05-26T05:14:09.530-04:00Comments on Two Special Girls: Bummer...Tina:0)http://www.blogger.com/profile/10260215878769244185noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-8324377882886503906.post-88293355064709339722009-02-12T14:19:00.000-05:002009-02-12T14:19:00.000-05:00Well...the good heart function is great news! Now ...Well...the good heart function is great news! Now we just need to help those little lungs out a bit. I sure hope you can get insurance to cover it. What a hassle. I'd like to hire someone to take care of all my insurance issues, who can do all the worrying for me.<BR/><BR/>Praying for Vaeh and her lungs!! I hope the viagra helps! :)<BR/>xoxoxThe Portashttps://www.blogger.com/profile/07311852620575462361noreply@blogger.comtag:blogger.com,1999:blog-8324377882886503906.post-36470474430028248252009-02-11T08:40:00.000-05:002009-02-11T08:40:00.000-05:00No meds yet... if I don't hear by noon I'm making ...No meds yet... if I don't hear by noon I'm making phone calls!Tina:0)https://www.blogger.com/profile/10260215878769244185noreply@blogger.comtag:blogger.com,1999:blog-8324377882886503906.post-16513342473087065472009-02-11T08:11:00.000-05:002009-02-11T08:11:00.000-05:00Just thinking about you guys. Hoping you got the m...Just thinking about you guys. Hoping you got the medication squared away.<BR/><BR/>We're getting ready to head in to see our cardiologist right now. I al ways get so nervous on these days. I'll blog about it when I get home.<BR/><BR/>Take care,<BR/>VanessaAnonymoushttps://www.blogger.com/profile/12195604999109772643noreply@blogger.comtag:blogger.com,1999:blog-8324377882886503906.post-27035112158437567442009-02-09T23:15:00.000-05:002009-02-09T23:15:00.000-05:00Great news on the heart function, but I'm sure it ...Great news on the heart function, but I'm sure it was hard to hear about the pulmonary hypertension. I hope the drug does the trick, sure would be better than lugging around the O2. Also, would it be worth contacting the manufacturer directly if the insurance doesn't cover it? What is the cost differential with O2 therapy? Would O2 be more expensive for the insurance company? That might be a good argument to justify the meds. Either way, I hope you get it sorted out!<BR/><BR/>Sending some extra prayers your way!minahttps://www.blogger.com/profile/17789396341555827738noreply@blogger.comtag:blogger.com,1999:blog-8324377882886503906.post-2015502344181595812009-02-09T22:24:00.000-05:002009-02-09T22:24:00.000-05:00Ugh... if it isn't one thing, its another. I swea...Ugh... if it isn't one thing, its another. I swear the insurance part of having a needy child is almost worse than having to care for the child itself. It could be a full time job!<BR/><BR/>Good luck with that one!Stephanie Ellingerhttps://www.blogger.com/profile/10469890467641003695noreply@blogger.comtag:blogger.com,1999:blog-8324377882886503906.post-60700534518486844932009-02-09T22:17:00.000-05:002009-02-09T22:17:00.000-05:00Boo on the lungs!! But yea on the good heart func...Boo on the lungs!! But yea on the good heart function!! <BR/><BR/>I hope that you are able to get your insurance straightened out very quickly!!<BR/><BR/><3,<BR/>Jenniferjencooperhttps://www.blogger.com/profile/04143842044584630770noreply@blogger.comtag:blogger.com,1999:blog-8324377882886503906.post-59826302638523367502009-02-09T19:16:00.000-05:002009-02-09T19:16:00.000-05:00oh...what does that mean (I know..I'll just google...oh...what does that mean (I know..I'll just google it...)..the pulmonary hypertension?? Are her lungs too wet?<BR/><BR/>so...does she keep wearing the O2?<BR/><BR/>oh...we have a friend here who's little man was on viagra for a while (isn't that just funny?)..for the same reason, the stinky lungs.<BR/> <BR/>you know...many people (me included until Isaac) don't realize how hand-in-hand the heart and lungs work together. <BR/><BR/>I will pray for Vaeh and her lungs.<BR/>at least now her heart is in a good place and focus is on her lungs.<BR/><BR/>have a good week!Kathyhttps://www.blogger.com/profile/17360490053483814426noreply@blogger.comtag:blogger.com,1999:blog-8324377882886503906.post-59768195346341804032009-02-09T18:08:00.001-05:002009-02-09T18:08:00.001-05:00We are in the same boat sister. Arianna's heart is...We are in the same boat sister. Arianna's heart is doing great but she has the pulmonary edema. :( <BR/><BR/>I just think it's ridiculous the insurance won't pay for it. I'll be praying this gets worked out ASAP. <BR/><BR/>Do they expect the pulmonary hypertension to go away after being on the medication? <BR/><BR/>If you need anything, or just someone to talk to, give me a call. <BR/><BR/>Lots of love,<BR/>VanessaAnonymoushttps://www.blogger.com/profile/12195604999109772643noreply@blogger.comtag:blogger.com,1999:blog-8324377882886503906.post-43135772898692958312009-02-09T18:08:00.000-05:002009-02-09T18:08:00.000-05:00We are in the same boat sister. Arianna's heart is...We are in the same boat sister. Arianna's heart is doing great but she has the pulmonary edema. :( <BR/><BR/>I just think it's ridiculous the insurance won't pay for it. I'll be praying this gets worked out ASAP. <BR/><BR/>Do they expect the pulmonary hypertension to go away after being on the medication? <BR/><BR/>If you need anything, or just someone to talk to, give me a call. <BR/><BR/>Lots of love,<BR/>VanessaAnonymoushttps://www.blogger.com/profile/12195604999109772643noreply@blogger.com